Note: The job is a remote job and is open to candidates in USA. The Sarcoma Foundation of America advances the interests of the sarcoma community through education, advocacy, research engagement, and patient-focused initiatives. The Program Manager, Engagement will manage community and patient advocacy programs, develop strategic partnerships, assess community needs, support research engagement, coordinate advocacy events, and create educational and patient-support materials.
Responsibilities
- Manage SFA’s network of sarcoma ambassadors and community advisory groups
- Develop and manage strategic partnerships that advance SFA’s patient education efforts, including pharma and other organizations
- Assess community needs through surveys, focus groups, and stakeholder meetings to inform program development
- Identify education opportunities and collaborate with the Research Engagement team to execute education priorities
- Plan and execute Advocacy Weekend/Hill Day in collaboration with the Director of Engagement and Advocacy
- Partner with the Research Engagement team on patient-focused research, including identifying and supporting patient advocates
- Develop and maintain a database of patient advocates to support organizational initiatives
- Assist with patient engagement website content, including drafting, editing, and proofing materials
- Collaborate with communications staff to share information on health policy, advocacy, and science education
- Lead development of materials and initiatives that support sarcoma patients and survivors
- Represent SFA at meetings and community events to enhance visibility and partnerships
- Travel as required and perform other duties as assigned
Skills
- Demonstrated experience with community outreach and engagement
- Experience in patient advocacy and support in the cancer space
- Strong relationship-building skills with external stakeholders and partners
- Excellent written and verbal communication skills
- Creative, resourceful, and independent problem-solving ability
- Strong organizational skills with the ability to manage multiple priorities and deadlines
- Willingness and ability to travel
- Bachelor's degree required
- Minimum of seven (7) years of experience in a health organization or related field such as public health, health education, or health promotion, or an equivalent combination of education and experience
- Self-starter with an entrepreneurial mindset
- This position can be fully remote, with occasional travel to the office or events as needed
- Direct experience with sarcoma is strongly preferred
Benefits
- This position can be fully remote, with occasional travel to the office or events as needed.
- Full-time employment
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