Patient Support & Education, Senior Associate

Job Title: Patient Support & Education, Senior Associate Job Status: Full-Time FLSA: Exempt Compensation: $55,000-$62,000 Reports to: Director of Education Programs Position Summary The Patient Support & Education Senior Associate oversees the Vasculitis Foundation’s (VF) Patient Support Program and serves as a primary contact for people living with vasculitis and their caregivers—providing compassionate support, fostering community engagement, and connecting them with essential resources and programs. As a key member of the Education Team, this role contributes to the development of trusted vasculitis educational materials and resources for patients and healthcare professionals (HCPs). The ideal candidate is highly organized, collaborative, and resourceful, with the ability to adapt to evolving organizational priorities. This is a hands-on role that requires strong communication and project management skills. Experience in nonprofit organizations, particularly in health or rare disease, is preferred. Key Responsibilities Patient Support & Community Engagement Patient Resource Navigation Respond promptly and professionally to inquiries received via phone, email, website, and social media platforms, connecting individuals with VF programs, resources, and appropriate external resources. Support Groups Manage support group program logistics, timelines, and communications to ensure programs run smoothly. Co-facilitate weekly virtual support groups alongside licensed social worker and other staff (some evening meetings required). Assess evolving support group needs through periodic surveys and participant feedback. Community Engagement Coordinate Navigating Your Vasculitis Journey program for individuals diagnosed with vasculitis, working closely with facilitators and stakeholders; act as staff liaison for other VF patient groups. Educational Content Contribute to the development and maintenance of educational resources for patients and healthcare professionals. Conduct surveys and analyze results to assess evolving educational content needs, learning styles, and communication preferences. Administrative and Other Distribute educational literature and materials as requested. Maintain VF web resources such as the VF Find a Doctor tool, Clinical Trials table, and educational materials. Represent VF at conferences, symposia, and other community events, connecting participants with VF resources and programs. Other duties as assigned. VF's Core Competencies Purpose-Driven Commitment Lifelong Learning and Innovation Unified Teamwork Agility in Action Stakeholder Engagement and Service Excellence Qualifications Required Bachelor's degree in a relevant field such as health education, social work, communications, or a related area. At least five years of experience in patient support, education, community programs, or in a healthcare or nonprofit setting. Strong writing, editing, and proofreading skills. Highly detail-oriented with strong organizational skills and the ability to manage multiple projects simultaneously. Strong interpersonal skills with the ability to adapt communication style to diverse audiences, and work across teams. Proficiency with Google Suite, Microsoft Office, SurveyMonkey, Zoom, Slack, WordPress, and similar digital platforms. Willingness to travel for job-related events, meetings, and conferences (typically 3-5 times per year). Flexible mindset and an ability to adapt easily to shifting priorities. Benefits The Vasculitis Foundation offers a comprehensive and competitive benefits package, including: A collaborative, mission-driven team culture with a genuine commitment to work-life balance Core collaboration hours of 10:00 AM to 3:00 PM CST, with flexibility in start and end times A fully remote work environment, with travel for conferences and related events Professional development support, including a formal annual review process and individualized development planning Paid Time Off (PTO) Employer-sponsored health insurance: the Foundation covers 85% of the employee premium (dependent coverage available at full cost); optional dental and vision coverage 403(b) retirement plan with employer match after six months Generous family leave Work Environment The Vasculitis Foundation is a fully remote organization. This position requires effective performance in a home office, regular collaboration with team members across time zones through virtual communication tools, and travel to conferences, patient events, and VF-related activities. Equal Opportunity The Vasculitis Foundation is proud to be an equal opportunity employer. We celebrate diversity and are committed to creating an inclusive environment for all employees. We prohibit discrimination or harassment based on race, color, religion, age, sex, national origin, disability, genetics, veteran status, sexual orientation, gender identity or expression, marital or caregiver status, or any other characteristic protected by law. To apply, send your resume and cover letter to vf@vasculitisfoundation.org